Please feel free to get in contact with us if you have any information to add, questions to ask or just want to let us know your story about Potocki-Shaffer Syndrome. *We are not medical experts, just parents wanting to help.
We also have a very active and involved private Facebook Group for individuals with PSS and their families and carers.
A family built, informational website devoted to Potocki-Shaffer Syndrome, a rare deletion on Chromosome 11p11.2.
This website is a starting point for information about Potocki-Shaffer Syndrome and connecting families whose lives are effected by it. The content of this site is for information purposes only. All information is provided in good faith and nothing contained on this web site should be construed as medical advice.
